Patient data will be taken from specialist centres throughout the UK that store ovarian or testicular tissue for young people under 25, and from existing disease data. The data will include detailed information on diagnosis, treatment, tissue preservation, pubertal development, fertility assessments, tissue use and reproductive outcomes.
This data will be linked and transferred to a secure centrel electonic repositry in Leeds and will be made available for the purposes of audit and research, according to appropriate regulartory approvals.