Every patient should receive good quality care that is tailored to their specific needs. UKSTORE will provide information that can help inform clinical care for patients who store ovarian or testicular tissue.
Did you know?
- There are around 2000 people with stored ovarian or testicular tissue in the UK.
- Globally, only around 200 babies have been born from preserved ovarian tissue.
- There is currently no standard care pathway to support to young people with stored ovarian or testicular tissue as they transition into young adulthood.
Alongside the UKSTORE registry, a sub-study “Meeting the needs of young cancer patients and their caregivers after fertility tissue preservation“ will help design care for young people with stored fertility tissue. Tailored care will improve well-being and lead to better outcomes, reduced practice variations and enhanced overall quality of life.
Find out more and contact: Rebecca Mottram, Senior Research Nurse and NIHR Fellow.
University of Leeds, School of Medicine, Worsley Building, Clarendon Way, Leeds LS2 9JT.
r.mottram@leeds.ac.uk